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the FAQs about
Tourette Syndrome

Part 3 - Where Do I Go From Here?

3.1 - Support Groups and Medical Experts

[This list is copied out of "Tourette Syndrome and Human Behavior" - see the references]

United States of America:

Tourette Syndrome Association
42-40 Bell Boulevard
Bayside, NY 11361-2857
Phone:
718-224-2999 (voice M-F 9-5 EST)
800-237-0717 (recorded message only)
718-279-9596 (fax)
$35 (tax deductable) a year gets you the newsletter, and you help the TSA fund its many services to the TS community.

MASSACHUSETTS:
Tourette Syndrome Association
Massachusetts Chapter
12 Westland Rd
Watertown, MA 02172
Phone: 617-277-7589

WISCONSIN:
WTSA
c/o the Marshfield Clinic
1000 North Oak Ave
Marshfield, WI 54449-5777
Phone: 1-800-782-8581

WTSA c/o Marilyn Ornstien
2512 N Divison St.
Appleton, WI
54911
Phone: 1-414-739-WTSA

MICHIGAN:
Metro Detroit TSA
Art Abbott, president
410 Mary, Suite 101
Royal Oak, Michigan
48073
Phone: 1-248-577-0TSA (that's a zero, not an "oh")

SOUTHERN CALIFORNIA:
Tourette Syndrome Clinic
City of Hope National Medical Center
1500 E. Duarte Rd.
Duarte, CA 91010
Phone: 818-359-8111

England:

Tourettes Syndrome Association
Old Grange House
The Twitten
Southview Road PO33 2BY
Crowborough
East Sussex TW6 1HF

Mr. Roy Hillard
169 Wickham Way
Welling Kent, England

Canada:

Tourette Syndrome Foundation of Canada
173 Own Boulevard
Willowdale, Ontario
Canada M2P 1GA

Tourette Syndrome Foundation of Canada
238 Davenport Road, Box 343
Toronto, Ontario
M5R 1J6
Phone: 1-416-968-2009
Toll Free Number: 1-800-361-3120
Fax: 1-416-351-9267

Manitoba Society for Tourette Syndrome
P.O. Box 25064
1650 Main Street
Winnipeg, Canada R2V 4C7

South Africa:

Tourette's Syndrome Clinic
Department of Human Genetics
P.O. Box 2034
Pretoria 0001
Phone: 324-5060

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3.2 - Some References

Here a few books and articles. I haven't read all of them.
  1. Comings, D.E. Tourette Syndrome and Human Behaviour. Duarte, California: Hope Press, 1990.
    Thick, comprehensive and easy to follow. The focus is mostly on TS as a genetic disorder and as such it also contains a lot of family trees and statistics.
  2. Kurlan R (ed). Handbook of Tourette Syndrome and Related Tic and Behavioral Disorders. New York: Marcel Dekker, 1993.
    Mostly medical but it gives a very comprehensive treatment of various aspects of TS and tics. In the back there is an article by Dr. Oliver Sacks (of Awakenings fame) called "Tourette Syndrome: A Human Condition" which is a must-read.
  3. Sacks, O. A Surgeon's Life. The New Yorker, March 16, 1992; 85-94.
    An account by Dr. Oliver Sacks of spending a few days visiting a surgeon who is also a Tourettic (and, I think, president of the Tourette Syndrome Foundation of Canada).
  4. Sacks, O. The Man who Mistook his Wife for a Hat. (Picador?)
    The chapter title is "Witty Ticcy Ray," and it has interesting stuff on the good points of TS, and their implications for treatment, and speculations on why TS is believed to be much more common now than used to be thought.
  5. Seligman, Adam. Don't Think About Monkeys.
    An anthology of stories by people with TS.
  6. Harle Tracy (ed). Children with Tourette Syndrome, A Parents' guide. Woodbine House Publishers.


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